Tangled in red tape
I have reached a crossroads and am trying to decide what to do. I have been on my current chemo (Xeloda) since June '04. My insurance, (a Medicaid supplement) does not cover it and tell me they will not cover it anytime soon. The drug company has on their web-site that it is covered by Medicare. Up to now the drug company has been providing me with the drug, but are asking me to reapply for the program. I have to prove that I am not eligible for Medicaid. (my social security check alone puts me out of range for that). This means I have to try to explain to those folks all I want is a rejection letter . Add that the drug company defines income differently than medicaid, so the numbers are different. I almost want to go to plain old Medicare. I am also considering just stopping taking it.
The good side though... The side effects are really mild, aside from the fatigue and the sensitive gut. It also has wiped out one lymph node site. I have 3 bone sites, 2 are now "stable" meaning they are there but not growing. I am just tired of being tired.
No word still about approval for physical therapy, which is suppose to help with pain and might help he fatigue a bit.
I put this blog up to give others hope. Today I sound so negative. It will pass. It is only paperwork. I just get tired thinking about it.